Fibromyalgia Poems

Chronic Illness: What You Don’t See

You see me smiling and laughing You see me living my life You see me like anybody else But I'm hiding the truth You don't see the days I spend in bed The days I can barely move I am too fatigued, in too much pain Those are the days I hide away You don't… Continue reading Chronic Illness: What You Don’t See

Fibromyalgia

Fibro Friendly Hobbies

I have learnt to adapt my hobbies to suit my pain and fatigue, enabling me to still do things I find enjoyable no matter how I feel. Reading It is easy to forget about reading when I'm busy with work and come home exhausted, but it really does help me escape into a different world.… Continue reading Fibro Friendly Hobbies

Fibromyalgia Poems

Still in Pain

Some days are better Some days are worse But every day I'm in pain Even when I'm smiling Even when I'm laughing I'm still in pain Whether I'm out and about Or stuck in bed Im always in pain It never stops Even on my best days I am still in pain At times I… Continue reading Still in Pain

Fibromyalgia

How Pacing is Helping me Reduce Flare Ups

When I'm working, I can sometimes manage up to 20,000 steps in a day without realising. But boy do I suffer for it afterwards. The following days I would be lucky to manage 1,000 steps. Since starting my June challenge for Versus Arthritis to walk 8,000 steps a day, I started testing my limits trying… Continue reading How Pacing is Helping me Reduce Flare Ups

Fibromyalgia

Adapting Exercise for Chronic Pain: My Latest Walking Challenge

I have come to realise that any kind of exercise causes more pain, but no exercise is far worse. When I don't do any exercise, my muscles weaken which only leads to more pain. Most days at work I would normally get quite a lot of steps in, swapping between office work and outdoor work… Continue reading Adapting Exercise for Chronic Pain: My Latest Walking Challenge

Fibromyalgia Poems

The Worst Flare Days

The worst flare days Are the ones you don't expect They creep up silently Then pounce and cause devastation The worst flare days Are when you wake up And you just know Everywhere hurts and you have no energy The worst flare days Are depressing at best They cancel all your plans And make you… Continue reading The Worst Flare Days

Fibromyalgia Poems

When You Feel Like Giving Up

When you just feel like giving up Please know that you are enough Everything you do is an achievement No matter how big or small There is always a light at the end of the tunnel... Try not to judge yourself by others Make your own rules for your life Change your priorities to what… Continue reading When You Feel Like Giving Up

Fibromyalgia

Fibromyalgia and Allodynia Pain

Allodynia is a symptom of fibromyalgia where you get pain from something that others don't feel pain from. For example, brushing your hair can be painful to allodynia sufferers and even a pinch can be agony. It makes you ultra sensitive to anything your body touches. I find clothing labels can hurt more than itch… Continue reading Fibromyalgia and Allodynia Pain

Fibromyalgia

Staying Strong during Isolation

It is a trying time for everyone in the world right now with the COVID-19 pandemic. The majority of the world is on lockdown. You would think the chronically ill would be great at isolating themselves, since that is what we do in normal circumstances. The problem is, when we are feeling well enough we… Continue reading Staying Strong during Isolation

Fibromyalgia

Fibromyalgia and Internal Tremors

My newest symptom in the ever growing list is internal tremors. I started getting them in my lower left leg, in my calf where I often experience cramp. An internal tremor is a sensation of vibration within a muscle but without it physically showing any movement on the outside. This can make it quite hard… Continue reading Fibromyalgia and Internal Tremors