The life of a 20 something living with fibromyalgia
Being open about my health has been a massive journey. Before diagnosis, I kept quiet as anyone I was open to wouldn't believe me. I started to think I was going crazy and I wasn't actually ill, and after diagnosis that continued for a while. I knew it wasn't good for me, keeping everything internalised.… Continue reading Being Open About Health Helped Me Come To Terms With Chronic Illness
Fibromyalgia is a part of me,I didn't realise how much it could be.It's not just this condition I have to live with,I also deal with ME. ME makes my fatigue a separate entity, But it doesn't change my identity. I do my best with what I've got, But it's difficult to deal with mentally. Sometimes… Continue reading Fibromyalgia and ME
It can be hard enough eating healthy when your body is always low on energy due to chronic illness. Always craving sugar and fast food, and the ease of ordering something in rather than cooking. Add to the mix a busy lifestyle, often visiting places and going out to restaurants with friends and family, and… Continue reading My Experience of Healthy Eating with Chronic Illness
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It can be scary even thinking about broaching the subject of your health to your line manager. You may worry that they won't be understanding and will use it against you. Thankfully there are laws in place to protect those with disabilities. You may think they will treat you differently if they find out. You… Continue reading Adjustments in the Workplace
The access card is a card you can apply for if you are living with a disability. It can be used to prove disability and receive assistance without having to bring loads of documentation. It comes with different symbols depending on your access needs. I use mine for fibromyalgia and chronic fatigue syndrome and find… Continue reading My Experience of the Access Card
The worst thing about fatigue Is the constant tiredness The fuzzy head that means I need to rest The realisation that I can't do everything I want The worst thing about fatigue Is the inability to function The reality of having to rest The fact I feel judged for doing less The worst thing about… Continue reading The Worst Thing About Fatigue
I have been working in theme park entertainment for over 6 years, and worked my way up to a manager role. However, the role is no longer suitable for my health. Don't get me wrong, my managers have been understanding and made some adjustments such as not working over my hours, having split days off,… Continue reading Finding a New Job When Living with Chronic Illness
It's been such a long time since I last posted! I can only apologise. A lot has happened this year including lots of amazing things, but the one negative constant has been my health. As usual, my health has never been great, and it has not been helped by the pandemic, leading to lots of… Continue reading My Fight to Be Diagnosed With Chronic Fatigue Syndrome
Over the last year, since lockdowns forced me to rethink my lifestyle and how important my health is, I've made a decision to start putting myself first and it has really changed my outlook on life. Below are 6 ways I get the most out of life despite living with chronic pain and fatigue: I… Continue reading 6 Ways I Get the Most Out of Life Despite Chronic Illness
Hello Fibro Blog 