Fibromyalgia

Disneyland Paris with a Disability

I just came back from my first Disneyland Paris trip since officially being diagnosed with fibromyalgia. I have been 5 times in the last 5 years as it is my happy place away from reality! When I went last year I was in the process of being diagnosed. I paid for a letter from my… Continue reading Disneyland Paris with a Disability

Fibromyalgia Poems

A Good Day Does Not Mean I’m Pain Free

I wake up and I'm still in pain My body is stiff and aching I get up feeling the pain ease a little I don't feel too bad today ... I manage to shower and wash my hair I may even be able to dry it today It's a very rare day indeed Today is… Continue reading A Good Day Does Not Mean I’m Pain Free

Fibromyalgia

My Fibro Life

For Fibromyalgia Awareness Day on 12th May, I'm raising awareness by sharing my fibro story up to this point. I have been blogging about my experience with chronic illness and particularly fibromyalgia since July 2018 and ironically this is also my 100th post, so a good time to reflect on my fibro life. Fibromyalgia is… Continue reading My Fibro Life

Fibromyalgia

My Disney World Holiday with my ‘Conjoined Twin’ Fibromyalgia

Basically anywhere I go, my frenemy fibromyalgia goes too We are like conjoined twins unable to separate Like a leech it sticks to me, disgusting and unwanted And I cannot escape it no matter what I try I recently went to Disney World Florida for the first time and it was everything I hoped for… Continue reading My Disney World Holiday with my ‘Conjoined Twin’ Fibromyalgia

Fibromyalgia Poems

Planning for a Holiday when you Live with a Chronic Illness

Holidays can be a release for anyone, but especially for those living with a chronic illness. However there is a lot more to worry about when planning a holiday if you have an invisible condition. First of all make sure you have travel insurance that covers you well and is up to date with recent… Continue reading Planning for a Holiday when you Live with a Chronic Illness

Fibromyalgia

Opening Up to Someone Else is Helping Me be more Honest with Myself

I recently had some unexpected good news at work and it caught me so unawares that I cried in happiness. My manager is quite new to the role and I didn't know if she had been told much at all about my health. I've been fairly secretive about it, only revealing little snippets of my… Continue reading Opening Up to Someone Else is Helping Me be more Honest with Myself

Fibromyalgia, Fibromyalgia Poems

My 2018 Fibromyalgia Journey

Last year was without a doubt the toughest so far. From finally getting a diagnosis after years of chronic pain to a previous trauma causing PTSD and anxiety, but I survived it. I started my blog in July 2018 when I was inspired to write a poem to try to understand my illness. It was… Continue reading My 2018 Fibromyalgia Journey

Fibromyalgia Poems

It’s Hard to Stay Positive When You are in Pain 24/7

It's hard to stay positive when you are in pain 24/7 Your life revolves around trying to help yourself feel better You are constantly ill and often isolated from the outside world ... Its easy to fall into a pit of despair and loneliness Feeling like you are worthless and live a pointless existence You… Continue reading It’s Hard to Stay Positive When You are in Pain 24/7

Fibromyalgia Poems

My First Solo Holiday with Fibromyalgia

Everyone likes to stay within their comfort zone But sometimes you just need to take a risk My comfort zone is smaller than ever Since I was diagnosed with fibromyalgia And I've only hidden myself more and more over the last few months Finally I took a leap and I've gone on a solo holiday… Continue reading My First Solo Holiday with Fibromyalgia

Fibromyalgia Poems

You are Stronger than your Illness

When you're feeling down and blue Please remember you are important No matter how useless you feel No matter how weak you are ... You are strong enough to carry on To fight your demons and your pain To come out the other end With a smile on your face ... You may think you… Continue reading You are Stronger than your Illness