Fibromyalgia

Fibro Friendly Hobbies

I have learnt to adapt my hobbies to suit my pain and fatigue, enabling me to still do things I find enjoyable no matter how I feel. Reading It is easy to forget about reading when I'm busy with work and come home exhausted, but it really does help me escape into a different world.… Continue reading Fibro Friendly Hobbies

Fibromyalgia Poems

Still in Pain

Some days are better Some days are worse But every day I'm in pain Even when I'm smiling Even when I'm laughing I'm still in pain Whether I'm out and about Or stuck in bed Im always in pain It never stops Even on my best days I am still in pain At times I… Continue reading Still in Pain

Fibromyalgia

How Pacing is Helping me Reduce Flare Ups

When I'm working, I can sometimes manage up to 20,000 steps in a day without realising. But boy do I suffer for it afterwards. The following days I would be lucky to manage 1,000 steps. Since starting my June challenge for Versus Arthritis to walk 8,000 steps a day, I started testing my limits trying… Continue reading How Pacing is Helping me Reduce Flare Ups

Fibromyalgia

Adapting Exercise for Chronic Pain: My Latest Walking Challenge

I have come to realise that any kind of exercise causes more pain, but no exercise is far worse. When I don't do any exercise, my muscles weaken which only leads to more pain. Most days at work I would normally get quite a lot of steps in, swapping between office work and outdoor work… Continue reading Adapting Exercise for Chronic Pain: My Latest Walking Challenge

Fibromyalgia

Staying Strong during Isolation

It is a trying time for everyone in the world right now with the COVID-19 pandemic. The majority of the world is on lockdown. You would think the chronically ill would be great at isolating themselves, since that is what we do in normal circumstances. The problem is, when we are feeling well enough we… Continue reading Staying Strong during Isolation

Fibromyalgia

How a Flare Up Really Feels

A flare up is an increase of symptoms compared to your 'normal'. With fibromyalgia your normal includes pain 24/7 so it can be harder to know when you are flaring. They can last for any amount of time from a day to years and vary in severity. A flare up can be caused by any… Continue reading How a Flare Up Really Feels

Fibromyalgia

Disneyland Paris with a Disability

I just came back from my first Disneyland Paris trip since officially being diagnosed with fibromyalgia. I have been 5 times in the last 5 years as it is my happy place away from reality! When I went last year I was in the process of being diagnosed. I paid for a letter from my… Continue reading Disneyland Paris with a Disability

Fibromyalgia Poems

A Good Day Does Not Mean I’m Pain Free

I wake up and I'm still in pain My body is stiff and aching I get up feeling the pain ease a little I don't feel too bad today ... I manage to shower and wash my hair I may even be able to dry it today It's a very rare day indeed Today is… Continue reading A Good Day Does Not Mean I’m Pain Free

Fibromyalgia

My Fibro Life

For Fibromyalgia Awareness Day on 12th May, I'm raising awareness by sharing my fibro story up to this point. I have been blogging about my experience with chronic illness and particularly fibromyalgia since July 2018 and ironically this is also my 100th post, so a good time to reflect on my fibro life. Fibromyalgia is… Continue reading My Fibro Life

Fibromyalgia

My Disney World Holiday with my ‘Conjoined Twin’ Fibromyalgia

Basically anywhere I go, my frenemy fibromyalgia goes too We are like conjoined twins unable to separate Like a leech it sticks to me, disgusting and unwanted And I cannot escape it no matter what I try I recently went to Disney World Florida for the first time and it was everything I hoped for… Continue reading My Disney World Holiday with my ‘Conjoined Twin’ Fibromyalgia