The life of a 20 something living with fibromyalgia
Some flare ups can be down to stress, overexertion etc. But I find a lot of flare ups coincide with weather changes. My whole body reacts fo different weather. When it is humid, I get pressure headaches and my brain is super foggy and fuzzy. When it is stormy, my skin gets prickly. By far… Continue reading Managing Symptom Flare Ups in Cold Weather
When I'm not working I'm resting On my days off that is all I can do I know I have pushed myself I am too tired, in too much pain To do anything at all except rest I have no choice but to give in And I'm mostly okay with that I accept it as… Continue reading When I’m Not Working I’m Resting
You see me smiling and laughing You see me living my life You see me like anybody else But I'm hiding the truth You don't see the days I spend in bed The days I can barely move I am too fatigued, in too much pain Those are the days I hide away You don't… Continue reading Chronic Illness: What You Don’t See
I have learnt to adapt my hobbies to suit my pain and fatigue, enabling me to still do things I find enjoyable no matter how I feel. Reading It is easy to forget about reading when I'm busy with work and come home exhausted, but it really does help me escape into a different world.… Continue reading Fibro Friendly Hobbies
When I'm working, I can sometimes manage up to 20,000 steps in a day without realising. But boy do I suffer for it afterwards. The following days I would be lucky to manage 1,000 steps. Since starting my June challenge for Versus Arthritis to walk 8,000 steps a day, I started testing my limits trying… Continue reading How Pacing is Helping me Reduce Flare Ups
I have come to realise that any kind of exercise causes more pain, but no exercise is far worse. When I don't do any exercise, my muscles weaken which only leads to more pain. Most days at work I would normally get quite a lot of steps in, swapping between office work and outdoor work… Continue reading Adapting Exercise for Chronic Pain: My Latest Walking Challenge
I just came back from my first Disneyland Paris trip since officially being diagnosed with fibromyalgia. I have been 5 times in the last 5 years as it is my happy place away from reality! When I went last year I was in the process of being diagnosed. I paid for a letter from my… Continue reading Disneyland Paris with a Disability
Christmas is a busy, crazy time of year even to a healthy person. When you add chronic illness to the mix christmas can seem daunting at best. The key to surviving Christmas is working with your chronic illness not against it. Below I give some of my tips for getting through Christmas. Start Christmas shopping… Continue reading Surviving Christmas with Chronic Illness
I wake up and I'm still in pain My body is stiff and aching I get up feeling the pain ease a little I don't feel too bad today ... I manage to shower and wash my hair I may even be able to dry it today It's a very rare day indeed Today is… Continue reading A Good Day Does Not Mean I’m Pain Free
Everyone cancels plans from time to time Sometimes you can't be bothered, can't afford it or just don't want to go But with chronic illness sometimes your choice is between today and tomorrow You learn to prioritise some plans over others ... Sometimes you have to cancel to ensure you can attend another activity Other… Continue reading Cancelling Plans Because of your Health
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