I don't like my new normal I now have to spend my days off resting Just so I can continue the endless cycle Of pain and fatigue 24 hours a day ... I long for what my life used to be When the pain wasn't constant When the fatigue was manageable When I could achieve… Continue reading Chronic Illness: My New Normal
Tag: enjoy life
Tips on Pacing when you Live with Chronic Illness
Living with a chronic illness, you soon learn it flares up mostly when you overdo it. The key problem is that every day the level of activity before overdoing it can vary drastically. I have been trying to remind myself to pace but it can be especially hard when I'm having a good day. On… Continue reading Tips on Pacing when you Live with Chronic Illness
My Fibro Life
For Fibromyalgia Awareness Day on 12th May, I'm raising awareness by sharing my fibro story up to this point. I have been blogging about my experience with chronic illness and particularly fibromyalgia since July 2018 and ironically this is also my 100th post, so a good time to reflect on my fibro life. Fibromyalgia is… Continue reading My Fibro Life
My Disney World Holiday with my ‘Conjoined Twin’ Fibromyalgia
Basically anywhere I go, my frenemy fibromyalgia goes too We are like conjoined twins unable to separate Like a leech it sticks to me, disgusting and unwanted And I cannot escape it no matter what I try I recently went to Disney World Florida for the first time and it was everything I hoped for… Continue reading My Disney World Holiday with my ‘Conjoined Twin’ Fibromyalgia
The Importance of ‘Me’ Time
Sometimes life gets so busy you don't have a chance to take a minute for yourself; to put yourself first and think about your needs and wants. Other people become the priority, and you push yourself too far without realising. Sometimes you just have to say no and take some 'Me' time. Take a step… Continue reading The Importance of ‘Me’ Time
Planning for a Holiday when you Live with a Chronic Illness
Holidays can be a release for anyone, but especially for those living with a chronic illness. However there is a lot more to worry about when planning a holiday if you have an invisible condition. First of all make sure you have travel insurance that covers you well and is up to date with recent… Continue reading Planning for a Holiday when you Live with a Chronic Illness
Opening Up to Someone Else is Helping Me be more Honest with Myself
I recently had some unexpected good news at work and it caught me so unawares that I cried in happiness. My manager is quite new to the role and I didn't know if she had been told much at all about my health. I've been fairly secretive about it, only revealing little snippets of my… Continue reading Opening Up to Someone Else is Helping Me be more Honest with Myself
My First Solo Holiday with Fibromyalgia
Everyone likes to stay within their comfort zone But sometimes you just need to take a risk My comfort zone is smaller than ever Since I was diagnosed with fibromyalgia And I've only hidden myself more and more over the last few months Finally I took a leap and I've gone on a solo holiday… Continue reading My First Solo Holiday with Fibromyalgia
Mental Health Issues and Chronic Illness
Having a chronic illness is hard It not only takes a toll on your body But also on your mental health You can often be housebound Unable to go out and socialise It can leave you very isolated ... When you're in a flare up Your mind starts to wander Will you ever feel better?… Continue reading Mental Health Issues and Chronic Illness
Seeing the Beauty
It's easy to forget the positives To let the pain control your life But I am slowly learning To look for the beauty instead Going on a little adventure Breathing in some fresh air Whatever you can handle Just get out and see the world Sit and watch the day go by In a secluded… Continue reading Seeing the Beauty