The life of a 20 something living with fibromyalgia
Please note: This post is based on UK experience, where laws protect people with disabilities from discrimination. My managers have always been aware of my health conditions - fibromyalgia and CFS/ME - and my current manager (as of September 2024) also lives with fibromyalgia. This shared experience helps them better understand what I go through.… Continue reading Reasonable Adjustments at Work
As part of my fibromyalgia, I can get bad lower back pain. I have learnt stretches that ease it over time but nothing prepared me for the extreme back pain I've recently experienced. About 2 weeks ago, I was just about to leave the house. My back had been getting tighter and more uncomfortable over… Continue reading Severe Back Pain Flare Up
I recently invested in the Visible App, starting off with the free version first, but found it so helpful, I made the plunge and signed up to the subscription. This includes a Polar Heart Rate monitor and arm strap, to accurately measure heart rate throughout the day. If you are unsure if it is right… Continue reading My Experience with the Visible App
I recently got married and it was the perfect day! Not to say it wasn't a struggle dealing with my chronic health conditions in the lead up and even after the wedding day. It can be difficult to cope even when there are no stresses, let alone when planning a wedding. Firstly, I never realised… Continue reading Coping with Chronic Illness when Getting Married
Fibromyalgia is a part of me,I didn't realise how much it could be.It's not just this condition I have to live with,I also deal with ME. ME makes my fatigue a separate entity, But it doesn't change my identity. I do my best with what I've got, But it's difficult to deal with mentally. Sometimes… Continue reading Fibromyalgia and ME
It can be hard enough eating healthy when your body is always low on energy due to chronic illness. Always craving sugar and fast food, and the ease of ordering something in rather than cooking. Add to the mix a busy lifestyle, often visiting places and going out to restaurants with friends and family, and… Continue reading My Experience of Healthy Eating with Chronic Illness
Chronic illness doesn't vanishJust because I have plansIt doesn't stop so I can liveWhen my schedule gets filled When I am busy in my lifeMy health takes a back seatI need to focus on my plansNot on how I'm feeling But that's when my health takes a diveMy fatigue starts to showIt won't be forgotten… Continue reading Chronic Illness Doesn’t Vanish Just Because I Have Plans
The access card is a card you can apply for if you are living with a disability. It can be used to prove disability and receive assistance without having to bring loads of documentation. It comes with different symbols depending on your access needs. I use mine for fibromyalgia and chronic fatigue syndrome and find… Continue reading My Experience of the Access Card
I have been working in theme park entertainment for over 6 years, and worked my way up to a manager role. However, the role is no longer suitable for my health. Don't get me wrong, my managers have been understanding and made some adjustments such as not working over my hours, having split days off,… Continue reading Finding a New Job When Living with Chronic Illness
It's been such a long time since I last posted! I can only apologise. A lot has happened this year including lots of amazing things, but the one negative constant has been my health. As usual, my health has never been great, and it has not been helped by the pandemic, leading to lots of… Continue reading My Fight to Be Diagnosed With Chronic Fatigue Syndrome
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