The life of a 20 something living with fibromyalgia
Basically anywhere I go, my frenemy fibromyalgia goes too We are like conjoined twins unable to separate Like a leech it sticks to me, disgusting and unwanted And I cannot escape it no matter what I try I recently went to Disney World Florida for the first time and it was everything I hoped for… Continue reading My Disney World Holiday with my ‘Conjoined Twin’ Fibromyalgia
Holidays can be a release for anyone, but especially for those living with a chronic illness. However there is a lot more to worry about when planning a holiday if you have an invisible condition. First of all make sure you have travel insurance that covers you well and is up to date with recent… Continue reading Planning for a Holiday when you Live with a Chronic Illness
I recently had some unexpected good news at work and it caught me so unawares that I cried in happiness. My manager is quite new to the role and I didn't know if she had been told much at all about my health. I've been fairly secretive about it, only revealing little snippets of my… Continue reading Opening Up to Someone Else is Helping Me be more Honest with Myself
Last year was without a doubt the toughest so far. From finally getting a diagnosis after years of chronic pain to a previous trauma causing PTSD and anxiety, but I survived it. I started my blog in July 2018 when I was inspired to write a poem to try to understand my illness. It was… Continue reading My 2018 Fibromyalgia Journey
It's hard to stay positive when you are in pain 24/7 Your life revolves around trying to help yourself feel better You are constantly ill and often isolated from the outside world ... Its easy to fall into a pit of despair and loneliness Feeling like you are worthless and live a pointless existence You… Continue reading It’s Hard to Stay Positive When You are in Pain 24/7
Everyone likes to stay within their comfort zone But sometimes you just need to take a risk My comfort zone is smaller than ever Since I was diagnosed with fibromyalgia And I've only hidden myself more and more over the last few months Finally I took a leap and I've gone on a solo holiday… Continue reading My First Solo Holiday with Fibromyalgia
When you're feeling down and blue Please remember you are important No matter how useless you feel No matter how weak you are ... You are strong enough to carry on To fight your demons and your pain To come out the other end With a smile on your face ... You may think you… Continue reading You are Stronger than your Illness
It's easy to forget the positives To let the pain control your life But I am slowly learning To look for the beauty instead Going on a little adventure Breathing in some fresh air Whatever you can handle Just get out and see the world Sit and watch the day go by In a secluded… Continue reading Seeing the Beauty
Sometimes you just need a break To get away from the stress of life Breathe in the fresh air And relax for a while Take in the sights of the world Remind yourself of the beauty it holds Look at life from a different angle And enjoy yourself for a while Do the things you… Continue reading Learn to Live Again
This is a song I wrote a couple of years ago. I sing it on the bad days to keep me going ♥️ I've been lying awake all night wondering how it came to light I've been telling myself nothing's wrong when nothing's going right I've been waiting around trying to figure out what the… Continue reading One Day at a Time
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