Fibromyalgia

Tips on Pacing when you Live with Chronic Illness

Living with a chronic illness, you soon learn it flares up mostly when you overdo it. The key problem is that every day the level of activity before overdoing it can vary drastically. I have been trying to remind myself to pace but it can be especially hard when I'm having a good day. On… Continue reading Tips on Pacing when you Live with Chronic Illness

Fibromyalgia

My Fibro Life

For Fibromyalgia Awareness Day on 12th May, I'm raising awareness by sharing my fibro story up to this point. I have been blogging about my experience with chronic illness and particularly fibromyalgia since July 2018 and ironically this is also my 100th post, so a good time to reflect on my fibro life. Fibromyalgia is… Continue reading My Fibro Life

Fibromyalgia

My Disney World Holiday with my ‘Conjoined Twin’ Fibromyalgia

Basically anywhere I go, my frenemy fibromyalgia goes too We are like conjoined twins unable to separate Like a leech it sticks to me, disgusting and unwanted And I cannot escape it no matter what I try I recently went to Disney World Florida for the first time and it was everything I hoped for… Continue reading My Disney World Holiday with my ‘Conjoined Twin’ Fibromyalgia

Fibromyalgia

The Importance of ‘Me’ Time

Sometimes life gets so busy you don't have a chance to take a minute for yourself; to put yourself first and think about your needs and wants. Other people become the priority, and you push yourself too far without realising. Sometimes you just have to say no and take some 'Me' time. Take a step… Continue reading The Importance of ‘Me’ Time

Fibromyalgia Poems

With Chronic Illness, a Cold is Never just a Cold

A cold can seem bad even to a healthy person But to someone with a chronic illness it can cause lots of complications Those with chronic illness already feel unwell even on a good day So add in a cold and every symptoms is multiplied ... Everything hurts, energy runs out completely You may be… Continue reading With Chronic Illness, a Cold is Never just a Cold

Fibromyalgia

Opening Up to Someone Else is Helping Me be more Honest with Myself

I recently had some unexpected good news at work and it caught me so unawares that I cried in happiness. My manager is quite new to the role and I didn't know if she had been told much at all about my health. I've been fairly secretive about it, only revealing little snippets of my… Continue reading Opening Up to Someone Else is Helping Me be more Honest with Myself

Fibromyalgia Poems

Fibromyalgia and Leg Weakness

One of the most disabling symptoms of fibromyalgia is leg weakness With fibromyalgia muscles can be injured easily Sometimes you don't even realise you've hurt yourself You thought you had gotten away with it, not overdone it But no matter how hard you try to strengthen your body Your legs are always the easiest to… Continue reading Fibromyalgia and Leg Weakness

Fibromyalgia Poems

I’m Not Faking Being Ill, I’m Faking Being Well

You see me smiling And think I am okay You see me out and about I look like I'm having fun ... You see me working hard I look like a normal person You see me socialising And think there can't be anything wrong ... But what you don't see When I get home I'm… Continue reading I’m Not Faking Being Ill, I’m Faking Being Well

Fibromyalgia Poems

Fibromyalgia: What is a Flare Up?

A flare up can be described as a worsening of your symptoms With fibromyalgia it means pain and fatigue to a level much higher than usual A flare up can often leave you bed ridden or at least house bound Having to rely on others to look after you And letting yourself rest until you… Continue reading Fibromyalgia: What is a Flare Up?

Fibromyalgia Poems

Fibromyalgia and Delayed Physical Reaction

One of the most unpredictable problems with fibromyalgia Is that your body deliberately delays reactions to stressful events This means that you do not immediately hurt yourself But you might feel the effects of something days later ... This symptom can make it hard to know when to stop Often your body doesn't tell you… Continue reading Fibromyalgia and Delayed Physical Reaction