I wake up and I'm still in pain My body is stiff and aching I get up feeling the pain ease a little I don't feel too bad today ... I manage to shower and wash my hair I may even be able to dry it today It's a very rare day indeed Today is… Continue reading A Good Day Does Not Mean I’m Pain Free
Tag: Poem
I Dare You To Look Beyond the Smile
When people ask how I am I usually smile and say "I'm fine" Oh the lies I tell to hide my pain I don't understand why I do it I just can't help it ... Am I hiding from judgment? Those who believe my illness is fake? Am I just trying to be brave? Lying… Continue reading I Dare You To Look Beyond the Smile
Fibromyalgia and IBS
It is understood that the majority of fibromyalgia sufferers also have IBS The link is still being researched but the pain and fatigue is bad enough When I was diagnosed with fibromyalgia is was also diagnosed with IBS The rheumatologist asked me questions about my stomach while working out my diagnosis ... I always thought… Continue reading Fibromyalgia and IBS
Trauma and Fibromyalgia
There have been many connections between fibromyalgia and trauma in articles from around the world The most recent studies suggest those with fibromyalgia have their bodies stuck on high alert For example with flu you suffer pain all over as your body is trying to fight the infection With fibromyalgia your body is in this… Continue reading Trauma and Fibromyalgia
Cancelling Plans Because of your Health
Everyone cancels plans from time to time Sometimes you can't be bothered, can't afford it or just don't want to go But with chronic illness sometimes your choice is between today and tomorrow You learn to prioritise some plans over others ... Sometimes you have to cancel to ensure you can attend another activity Other… Continue reading Cancelling Plans Because of your Health
Making the Most Out of a Doctor Appointment
We all know doctors are always in a rush, so it can be hard to get much out of an appointment You enter and panic, only saying the main things, then before you know it the appointment is over, no better than before the appointment I have started to plan my doctor appointments in advance… Continue reading Making the Most Out of a Doctor Appointment
Chronic Illness: My New Normal
I don't like my new normal I now have to spend my days off resting Just so I can continue the endless cycle Of pain and fatigue 24 hours a day ... I long for what my life used to be When the pain wasn't constant When the fatigue was manageable When I could achieve… Continue reading Chronic Illness: My New Normal
Chronic Illness and Anxiety
A chronic illness is difficult at the best of times The many symptoms can leave you often house bound And can mean you are not able to be as sociable as you want to be The unpredictability of chronic illness can mean you are unable to make plans Or may have to cancel plans at… Continue reading Chronic Illness and Anxiety
With Chronic Illness, a Cold is Never just a Cold
A cold can seem bad even to a healthy person But to someone with a chronic illness it can cause lots of complications Those with chronic illness already feel unwell even on a good day So add in a cold and every symptoms is multiplied ... Everything hurts, energy runs out completely You may be… Continue reading With Chronic Illness, a Cold is Never just a Cold
Fibromyalgia and Leg Weakness
One of the most disabling symptoms of fibromyalgia is leg weakness With fibromyalgia muscles can be injured easily Sometimes you don't even realise you've hurt yourself You thought you had gotten away with it, not overdone it But no matter how hard you try to strengthen your body Your legs are always the easiest to… Continue reading Fibromyalgia and Leg Weakness