The life of a 20 something living with fibromyalgia
Please note: This post is based on UK experience, where laws protect people with disabilities from discrimination. My managers have always been aware of my health conditions - fibromyalgia and CFS/ME - and my current manager (as of September 2024) also lives with fibromyalgia. This shared experience helps them better understand what I go through.… Continue reading Reasonable Adjustments at Work
As part of my fibromyalgia, I can get bad lower back pain. I have learnt stretches that ease it over time but nothing prepared me for the extreme back pain I've recently experienced. About 2 weeks ago, I was just about to leave the house. My back had been getting tighter and more uncomfortable over… Continue reading Severe Back Pain Flare Up
I recently invested in the Visible App, starting off with the free version first, but found it so helpful, I made the plunge and signed up to the subscription. This includes a Polar Heart Rate monitor and arm strap, to accurately measure heart rate throughout the day. If you are unsure if it is right… Continue reading My Experience with the Visible App
I recently got married and it was the perfect day! Not to say it wasn't a struggle dealing with my chronic health conditions in the lead up and even after the wedding day. It can be difficult to cope even when there are no stresses, let alone when planning a wedding. Firstly, I never realised… Continue reading Coping with Chronic Illness when Getting Married
Being open about my health has been a massive journey. Before diagnosis, I kept quiet as anyone I was open to wouldn't believe me. I started to think I was going crazy and I wasn't actually ill, and after diagnosis that continued for a while. I knew it wasn't good for me, keeping everything internalised.… Continue reading Being Open About Health Helped Me Come To Terms With Chronic Illness
Fibromyalgia is a part of me,I didn't realise how much it could be.It's not just this condition I have to live with,I also deal with ME. ME makes my fatigue a separate entity, But it doesn't change my identity. I do my best with what I've got, But it's difficult to deal with mentally. Sometimes… Continue reading Fibromyalgia and ME
It can be hard enough eating healthy when your body is always low on energy due to chronic illness. Always craving sugar and fast food, and the ease of ordering something in rather than cooking. Add to the mix a busy lifestyle, often visiting places and going out to restaurants with friends and family, and… Continue reading My Experience of Healthy Eating with Chronic Illness
Chronic illness doesn't vanishJust because I have plansIt doesn't stop so I can liveWhen my schedule gets filled When I am busy in my lifeMy health takes a back seatI need to focus on my plansNot on how I'm feeling But that's when my health takes a diveMy fatigue starts to showIt won't be forgotten… Continue reading Chronic Illness Doesn’t Vanish Just Because I Have Plans
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It can be scary even thinking about broaching the subject of your health to your line manager. You may worry that they won't be understanding and will use it against you. Thankfully there are laws in place to protect those with disabilities. You may think they will treat you differently if they find out. You… Continue reading Adjustments in the Workplace
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