Fibromyalgia Poems

Still in Pain

Some days are better Some days are worse But every day I'm in pain Even when I'm smiling Even when I'm laughing I'm still in pain Whether I'm out and about Or stuck in bed Im always in pain It never stops Even on my best days I am still in pain At times I… Continue reading Still in Pain

Fibromyalgia

How Pacing is Helping me Reduce Flare Ups

When I'm working, I can sometimes manage up to 20,000 steps in a day without realising. But boy do I suffer for it afterwards. The following days I would be lucky to manage 1,000 steps. Since starting my June challenge for Versus Arthritis to walk 8,000 steps a day, I started testing my limits trying… Continue reading How Pacing is Helping me Reduce Flare Ups

Fibromyalgia Poems

The Worst Flare Days

The worst flare days Are the ones you don't expect They creep up silently Then pounce and cause devastation The worst flare days Are when you wake up And you just know Everywhere hurts and you have no energy The worst flare days Are depressing at best They cancel all your plans And make you… Continue reading The Worst Flare Days

Fibromyalgia

How a Flare Up Really Feels

A flare up is an increase of symptoms compared to your 'normal'. With fibromyalgia your normal includes pain 24/7 so it can be harder to know when you are flaring. They can last for any amount of time from a day to years and vary in severity. A flare up can be caused by any… Continue reading How a Flare Up Really Feels

Fibromyalgia

Disneyland Paris with a Disability

I just came back from my first Disneyland Paris trip since officially being diagnosed with fibromyalgia. I have been 5 times in the last 5 years as it is my happy place away from reality! When I went last year I was in the process of being diagnosed. I paid for a letter from my… Continue reading Disneyland Paris with a Disability

Fibromyalgia

Surviving Christmas with Chronic Illness

Christmas is a busy, crazy time of year even to a healthy person. When you add chronic illness to the mix christmas can seem daunting at best. The key to surviving Christmas is working with your chronic illness not against it. Below I give some of my tips for getting through Christmas. Start Christmas shopping… Continue reading Surviving Christmas with Chronic Illness

Fibromyalgia Poems

I’m Fine

I'm fine Is the easiest thing to say It can be a sign That you're having a bad day ... I'm fine Most won't look beyond the smile I don't want to explain Sometimes it's just plain denial I'm fine I don't want to admit That I am not okay That I hurt and I… Continue reading I’m Fine

Fibromyalgia Poems

I Long to Feel My Age Just Once

I long to feel my age just once To be able to do what my friends do To go out and have fun all day and night Without running out of energy I long to feel my age Not to be forced to cancel all my plans To be able to do what I want… Continue reading I Long to Feel My Age Just Once

Fibromyalgia Poems

How Chronic Pain Can Affect Mental Health

Chronic pain is not only hard on the body but also on the mind It can make you feel worthless as you can no longer achieve all you could before It can make you feel lonely from having to spend so much time at home and nobody seems to understand your pain It can make… Continue reading How Chronic Pain Can Affect Mental Health

Fibromyalgia Poems

I Dare You To Look Beyond the Smile

When people ask how I am I usually smile and say "I'm fine" Oh the lies I tell to hide my pain I don't understand why I do it I just can't help it ... Am I hiding from judgment? Those who believe my illness is fake? Am I just trying to be brave? Lying… Continue reading I Dare You To Look Beyond the Smile