The life of a 20 something living with fibromyalgia
Please note: This post is based on UK experience, where laws protect people with disabilities from discrimination. My managers have always been aware of my health conditions - fibromyalgia and CFS/ME - and my current manager (as of September 2024) also lives with fibromyalgia. This shared experience helps them better understand what I go through.… Continue reading Reasonable Adjustments at Work
As part of my fibromyalgia, I can get bad lower back pain. I have learnt stretches that ease it over time but nothing prepared me for the extreme back pain I've recently experienced. About 2 weeks ago, I was just about to leave the house. My back had been getting tighter and more uncomfortable over… Continue reading Severe Back Pain Flare Up
To healthy people, a cold is a minor inconvenience. To someone living with a weakened immune system it can mean so much more. Since covid, people have more of an appreciation of how bad symptoms can be, but with chronic illness, any mild cold can become deadly, or at least severe. You can feel like… Continue reading How Viruses Affect Those With Chronic Illness
Fibromyalgia is a part of me,I didn't realise how much it could be.It's not just this condition I have to live with,I also deal with ME. ME makes my fatigue a separate entity, But it doesn't change my identity. I do my best with what I've got, But it's difficult to deal with mentally. Sometimes… Continue reading Fibromyalgia and ME
Chronic illness doesn't vanishJust because I have plansIt doesn't stop so I can liveWhen my schedule gets filled When I am busy in my lifeMy health takes a back seatI need to focus on my plansNot on how I'm feeling But that's when my health takes a diveMy fatigue starts to showIt won't be forgotten… Continue reading Chronic Illness Doesn’t Vanish Just Because I Have Plans
Some days I feel like I am losing my mindI can't seem to form sentencesThe words don't make any senseAnd I know others can tell Those days I stumble and can't seem to focusEverything in me seems to stopI forget what I'm doingWhat I was trying to say Some days I feel like others think… Continue reading Losing My Mind
It can be scary even thinking about broaching the subject of your health to your line manager. You may worry that they won't be understanding and will use it against you. Thankfully there are laws in place to protect those with disabilities. You may think they will treat you differently if they find out. You… Continue reading Adjustments in the Workplace
The worst thing about fatigue Is the constant tiredness The fuzzy head that means I need to rest The realisation that I can't do everything I want The worst thing about fatigue Is the inability to function The reality of having to rest The fact I feel judged for doing less The worst thing about… Continue reading The Worst Thing About Fatigue
Over the last year, since lockdowns forced me to rethink my lifestyle and how important my health is, I've made a decision to start putting myself first and it has really changed my outlook on life. Below are 6 ways I get the most out of life despite living with chronic pain and fatigue: I… Continue reading 6 Ways I Get the Most Out of Life Despite Chronic Illness
When I was diagnosed with fibromyalgia, the only people I knew who had it were far older than me. When I started to look into it though, quite a lot of young people do suffer with it but it isn't often diagnosed till much later in life. My first symptoms started when I was 13… Continue reading What It’s Like To Be A Young Adult With Fibromyalgia
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