If I had to name just one thing this illness has taken from me, I would be choice I no longer have the ability to choose when I go out or have a social life A lot of people think it's my choice to cancel plans or make excuses However my body takes that choice… Continue reading Choice
Unpredictable
Living with fibromyalgia is really unpredictable You never know when you are going to feel okay or when you are going to flare up It's like my body rolls dice every second of every day to decide how im going to feel Sometimes you can feel a flare coming on, but often a pain can… Continue reading Unpredictable
Showing the Pain
I find it very hard to express the pain I'm feeling or anything about my illness, to be honest I feel like people will judge me, think I'm playing on it for effect or for sympathy I find myself staying silent about it all. It's the only way I can get away from the guilt… Continue reading Showing the Pain
When the Fatigue Hits
Recently the fatigue has really hit me hard I'm always tired as it is, but add in a cold and now a sinus infection and I have nothing left If you know about the spoon theory, I have about 3 spoons every day currently For anyone who doesn't know what this means, it's a concept… Continue reading When the Fatigue Hits
Questioning my Illness
Most days I feel my illness I know it's real and I feel awful Like the life is sucked out of me But sometimes no matter how rarely I feel almost human Like I'm miraculously cured On those good days I question my illness Like everyone else does for me I wonder if I was… Continue reading Questioning my Illness
Extra Illness
To me normality is being ill My body always feels like it's coming down with the flu The full body aches And feeling constantly drained When I do get a cold Everything I normally experience is heightened It makes my symptoms worse And I'm even more drained I can't carry on like others I can't… Continue reading Extra Illness
Sleep
Sleep is a blessing and a curse It is both great and evil Possible and impossible Easy and hard Some nights I sleep well It's the only time I don't feel pain The only time I feel normal It is needed for me to survive Even when I sleep well I still wake up tired… Continue reading Sleep
Learn to Live Again
Sometimes you just need a break To get away from the stress of life Breathe in the fresh air And relax for a while Take in the sights of the world Remind yourself of the beauty it holds Look at life from a different angle And enjoy yourself for a while Do the things you… Continue reading Learn to Live Again
The Future
I worry about the future And what I will be like Will I be able to keep a job? Will I have to live off benefits? If I'm struggling now How will I cope? I try not to think about it Try not to dwell But sometimes I can't help it When I'm feeling down… Continue reading The Future
More Than Tired
I'm more than tired I'm chronically fatigued I never have much energy Sleeping won't make it better I'm more than tired I struggle to sleep And when I do sleep I still wake exhausted I'm more than tired So don't judge me Don't think I can sleep it off I live with it every day… Continue reading More Than Tired