The life of a 20 something living with fibromyalgia
Last year was without a doubt the toughest so far. From finally getting a diagnosis after years of chronic pain to a previous trauma causing PTSD and anxiety, but I survived it. I started my blog in July 2018 when I was inspired to write a poem to try to understand my illness. It was… Continue reading My 2018 Fibromyalgia Journey
It seems that having a chronic illness is like a nightmare game show I would call it Health Issue of the Week And show it to all of my friends and family It feels like every week I have a new symptom or a new injury Just to add to the ever growing list of… Continue reading Another Week Another Health Issue
You see me smiling And think I am okay You see me out and about I look like I'm having fun ... You see me working hard I look like a normal person You see me socialising And think there can't be anything wrong ... But what you don't see When I get home I'm… Continue reading I’m Not Faking Being Ill, I’m Faking Being Well
A flare up can be described as a worsening of your symptoms With fibromyalgia it means pain and fatigue to a level much higher than usual A flare up can often leave you bed ridden or at least house bound Having to rely on others to look after you And letting yourself rest until you… Continue reading Fibromyalgia: What is a Flare Up?
It is often said that fibromyalgia is not progressive But in the year since I have been diagnosed it has gotten much worse I have tried to stay active despite the pain and fatigue But despite all this my health just keeps deteriorating ... I used to be able to do up to 20,000 steps… Continue reading Do Fibromyalgia Symptoms Worsen Over Time?
I'm not able to dress up much anymore Comfort has to be the priority now There are so many things that make my pain worse Only the most comfortable clothes will do ... My body is sensitive to any rough material Anything that isn't completely soft itches or becomes painful On a bad day I… Continue reading Why I Have to Prioritise Comfort over Fashion
Fibromyalgia makes me feel old before my time Even others comment that I am like a 90 year old Thanks to the stiffness, the pain and the fatigue Every time someone mentions it, it only worries me more Its not a nice thought to know how much I'm already suffering How will I be when… Continue reading Fibromyalgia: Old Before My Time
You know you've overdone it You are exhausted and barely awake Your eyes twitch with fatigue But you are just too tired to sleep ... You lie down in a dark room Waiting for sleep to take hold Longing for it to be quick But you are just too tired to sleep ... You can… Continue reading When You’re Too Tired to Sleep
One of the most unpredictable problems with fibromyalgia Is that your body deliberately delays reactions to stressful events This means that you do not immediately hurt yourself But you might feel the effects of something days later ... This symptom can make it hard to know when to stop Often your body doesn't tell you… Continue reading Fibromyalgia and Delayed Physical Reaction
It's hard to stay positive when you are in pain 24/7 Your life revolves around trying to help yourself feel better You are constantly ill and often isolated from the outside world ... Its easy to fall into a pit of despair and loneliness Feeling like you are worthless and live a pointless existence You… Continue reading It’s Hard to Stay Positive When You are in Pain 24/7
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