The life of a 20 something living with fibromyalgia
Please note: This post is based on UK experience, where laws protect people with disabilities from discrimination. My managers have always been aware of my health conditions - fibromyalgia and CFS/ME - and my current manager (as of September 2024) also lives with fibromyalgia. This shared experience helps them better understand what I go through.… Continue reading Reasonable Adjustments at Work
I recently invested in the Visible App, starting off with the free version first, but found it so helpful, I made the plunge and signed up to the subscription. This includes a Polar Heart Rate monitor and arm strap, to accurately measure heart rate throughout the day. If you are unsure if it is right… Continue reading My Experience with the Visible App
I recently got married and it was the perfect day! Not to say it wasn't a struggle dealing with my chronic health conditions in the lead up and even after the wedding day. It can be difficult to cope even when there are no stresses, let alone when planning a wedding. Firstly, I never realised… Continue reading Coping with Chronic Illness when Getting Married
Being open about my health has been a massive journey. Before diagnosis, I kept quiet as anyone I was open to wouldn't believe me. I started to think I was going crazy and I wasn't actually ill, and after diagnosis that continued for a while. I knew it wasn't good for me, keeping everything internalised.… Continue reading Being Open About Health Helped Me Come To Terms With Chronic Illness
Fibromyalgia is a part of me,I didn't realise how much it could be.It's not just this condition I have to live with,I also deal with ME. ME makes my fatigue a separate entity, But it doesn't change my identity. I do my best with what I've got, But it's difficult to deal with mentally. Sometimes… Continue reading Fibromyalgia and ME
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It can be scary even thinking about broaching the subject of your health to your line manager. You may worry that they won't be understanding and will use it against you. Thankfully there are laws in place to protect those with disabilities. You may think they will treat you differently if they find out. You… Continue reading Adjustments in the Workplace
This has been a passion project since I was 15 years old. On the 29th July 2022, I get to call myself a published author! I never thought someone would actually want to publish the novel I worked on for 10 years, but here I am. At the age of 28, I am living my… Continue reading Being a Published Author with Chronic Illness
The access card is a card you can apply for if you are living with a disability. It can be used to prove disability and receive assistance without having to bring loads of documentation. It comes with different symbols depending on your access needs. I use mine for fibromyalgia and chronic fatigue syndrome and find… Continue reading My Experience of the Access Card
I have been working in theme park entertainment for over 6 years, and worked my way up to a manager role. However, the role is no longer suitable for my health. Don't get me wrong, my managers have been understanding and made some adjustments such as not working over my hours, having split days off,… Continue reading Finding a New Job When Living with Chronic Illness
Hello Fibro Blog 