The life of a 20 something living with fibromyalgia
It is more painful than you can imagine Every second of every day Even when I'm smiling Even when I'm having fun My toe suddenly hurts when I walk My knees feel battered and bruised My back falls apart doing the simplest of tasks And my hands ache so badly Flare ups are the worst… Continue reading The Truth about Living with Fibromyalgia
Some flare ups can be down to stress, overexertion etc. But I find a lot of flare ups coincide with weather changes. My whole body reacts fo different weather. When it is humid, I get pressure headaches and my brain is super foggy and fuzzy. When it is stormy, my skin gets prickly. By far… Continue reading Managing Symptom Flare Ups in Cold Weather
Like many living with fibromyalgia, I am willing to try most things that have any chance of reducing my symptoms. A while ago, I took a course over a few weeks all about tai chi for those living with fibromyalgia. I have always been a fast moving person, always wanting to help, running around at… Continue reading Tai Chi for Fibromyalgia
When I'm not working I'm resting On my days off that is all I can do I know I have pushed myself I am too tired, in too much pain To do anything at all except rest I have no choice but to give in And I'm mostly okay with that I accept it as… Continue reading When I’m Not Working I’m Resting
When I'm working, I can sometimes manage up to 20,000 steps in a day without realising. But boy do I suffer for it afterwards. The following days I would be lucky to manage 1,000 steps. Since starting my June challenge for Versus Arthritis to walk 8,000 steps a day, I started testing my limits trying… Continue reading How Pacing is Helping me Reduce Flare Ups
I have come to realise that any kind of exercise causes more pain, but no exercise is far worse. When I don't do any exercise, my muscles weaken which only leads to more pain. Most days at work I would normally get quite a lot of steps in, swapping between office work and outdoor work… Continue reading Adapting Exercise for Chronic Pain: My Latest Walking Challenge
It is a trying time for everyone in the world right now with the COVID-19 pandemic. The majority of the world is on lockdown. You would think the chronically ill would be great at isolating themselves, since that is what we do in normal circumstances. The problem is, when we are feeling well enough we… Continue reading Staying Strong during Isolation
A flare up is an increase of symptoms compared to your 'normal'. With fibromyalgia your normal includes pain 24/7 so it can be harder to know when you are flaring. They can last for any amount of time from a day to years and vary in severity. A flare up can be caused by any… Continue reading How a Flare Up Really Feels
I just came back from my first Disneyland Paris trip since officially being diagnosed with fibromyalgia. I have been 5 times in the last 5 years as it is my happy place away from reality! When I went last year I was in the process of being diagnosed. I paid for a letter from my… Continue reading Disneyland Paris with a Disability
Christmas is a busy, crazy time of year even to a healthy person. When you add chronic illness to the mix christmas can seem daunting at best. The key to surviving Christmas is working with your chronic illness not against it. Below I give some of my tips for getting through Christmas. Start Christmas shopping… Continue reading Surviving Christmas with Chronic Illness
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