The life of a 20 something living with fibromyalgia
I live my life in pain 24/7I do anything to stay comfyTo feel less painWhatever that entailsI often look a messWith my hair downIt just hurts to put it upSometimes even to brush itI live in trackiesNot because I love themBut because they are comfyTight clothes hurt meMy skin is often too sensitiveTo wear jeans… Continue reading As Comfortable as Possible
We are the abled disabled Too ill to be well But too well too be ill Some days we can act normal As though we aren't ill That doesn't mean we're well We give anything to be our old selves So we do our best to seem well Hide the fact that we're ill We… Continue reading The Abled Disabled
Fibromyalgia doesn't just consist of one type of pain It can be anything from burning to stabbing to tingling or anything inbetween It could be a mixture of all of the above. This pain can form in any part of the body at any time. From the knees to the feet, the back or my… Continue reading The Truth about Fibromyalgia Pain
It is so hard to admit to myself and to others that I'm struggling, for a multitude of reasons I am battling my own guilt and doubt every second of every day The guilt that I cannot do things I used to be able to do The guilt that I have to rely on others… Continue reading Admitting my Struggle
A good day doesn't mean I'm pain free Unfortunately there's no longer a day when I don't feel pain... or even a moment for that matter A good day doesn't mean I'm back to 'the old me' I still can't do everything a healthy person can do I still have to pace myself in an… Continue reading The Truth about Good Days
If I had to name just one thing this illness has taken from me, I would be choice I no longer have the ability to choose when I go out or have a social life A lot of people think it's my choice to cancel plans or make excuses However my body takes that choice… Continue reading Choice
Living with fibromyalgia is really unpredictable You never know when you are going to feel okay or when you are going to flare up It's like my body rolls dice every second of every day to decide how im going to feel Sometimes you can feel a flare coming on, but often a pain can… Continue reading Unpredictable
I find it very hard to express the pain I'm feeling or anything about my illness, to be honest I feel like people will judge me, think I'm playing on it for effect or for sympathy I find myself staying silent about it all. It's the only way I can get away from the guilt… Continue reading Showing the Pain
Recently the fatigue has really hit me hard I'm always tired as it is, but add in a cold and now a sinus infection and I have nothing left If you know about the spoon theory, I have about 3 spoons every day currently For anyone who doesn't know what this means, it's a concept… Continue reading When the Fatigue Hits
Most days I feel my illness I know it's real and I feel awful Like the life is sucked out of me But sometimes no matter how rarely I feel almost human Like I'm miraculously cured On those good days I question my illness Like everyone else does for me I wonder if I was… Continue reading Questioning my Illness
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