The life of a 20 something living with fibromyalgia
It is a trying time for everyone in the world right now with the COVID-19 pandemic. The majority of the world is on lockdown. You would think the chronically ill would be great at isolating themselves, since that is what we do in normal circumstances. The problem is, when we are feeling well enough we… Continue reading Staying Strong during Isolation
My newest symptom in the ever growing list is internal tremors. I started getting them in my lower left leg, in my calf where I often experience cramp. An internal tremor is a sensation of vibration within a muscle but without it physically showing any movement on the outside. This can make it quite hard… Continue reading Fibromyalgia and Internal Tremors
A flare up is an increase of symptoms compared to your 'normal'. With fibromyalgia your normal includes pain 24/7 so it can be harder to know when you are flaring. They can last for any amount of time from a day to years and vary in severity. A flare up can be caused by any… Continue reading How a Flare Up Really Feels
I just came back from my first Disneyland Paris trip since officially being diagnosed with fibromyalgia. I have been 5 times in the last 5 years as it is my happy place away from reality! When I went last year I was in the process of being diagnosed. I paid for a letter from my… Continue reading Disneyland Paris with a Disability
Christmas is a busy, crazy time of year even to a healthy person. When you add chronic illness to the mix christmas can seem daunting at best. The key to surviving Christmas is working with your chronic illness not against it. Below I give some of my tips for getting through Christmas. Start Christmas shopping… Continue reading Surviving Christmas with Chronic Illness
I long to feel my age just once To be able to do what my friends do To go out and have fun all day and night Without running out of energy I long to feel my age Not to be forced to cancel all my plans To be able to do what I want… Continue reading I Long to Feel My Age Just Once
I wake up and I'm still in pain My body is stiff and aching I get up feeling the pain ease a little I don't feel too bad today ... I manage to shower and wash my hair I may even be able to dry it today It's a very rare day indeed Today is… Continue reading A Good Day Does Not Mean I’m Pain Free
Everyone cancels plans from time to time Sometimes you can't be bothered, can't afford it or just don't want to go But with chronic illness sometimes your choice is between today and tomorrow You learn to prioritise some plans over others ... Sometimes you have to cancel to ensure you can attend another activity Other… Continue reading Cancelling Plans Because of your Health
When it comes to pain and illness, I find doctors just give you tablets and send you on your way thinking it will fix everything. However I have found often the side effects of medications can be worse than just the symptoms they help manage. The side effects can add extra symptoms I really cant… Continue reading Chronic Illness: Managing Symptoms Naturally
I don't like my new normal I now have to spend my days off resting Just so I can continue the endless cycle Of pain and fatigue 24 hours a day ... I long for what my life used to be When the pain wasn't constant When the fatigue was manageable When I could achieve… Continue reading Chronic Illness: My New Normal
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