The life of a 20 something living with fibromyalgia
Please note: This post is based on UK experience, where laws protect people with disabilities from discrimination. My managers have always been aware of my health conditions - fibromyalgia and CFS/ME - and my current manager (as of September 2024) also lives with fibromyalgia. This shared experience helps them better understand what I go through.… Continue reading Reasonable Adjustments at Work
I recently invested in the Visible App, starting off with the free version first, but found it so helpful, I made the plunge and signed up to the subscription. This includes a Polar Heart Rate monitor and arm strap, to accurately measure heart rate throughout the day. If you are unsure if it is right… Continue reading My Experience with the Visible App
I recently got married and it was the perfect day! Not to say it wasn't a struggle dealing with my chronic health conditions in the lead up and even after the wedding day. It can be difficult to cope even when there are no stresses, let alone when planning a wedding. Firstly, I never realised… Continue reading Coping with Chronic Illness when Getting Married
Chronic illness doesn't vanishJust because I have plansIt doesn't stop so I can liveWhen my schedule gets filled When I am busy in my lifeMy health takes a back seatI need to focus on my plansNot on how I'm feeling But that's when my health takes a diveMy fatigue starts to showIt won't be forgotten… Continue reading Chronic Illness Doesn’t Vanish Just Because I Have Plans
I have been working in theme park entertainment for over 6 years, and worked my way up to a manager role. However, the role is no longer suitable for my health. Don't get me wrong, my managers have been understanding and made some adjustments such as not working over my hours, having split days off,… Continue reading Finding a New Job When Living with Chronic Illness
Over the last year, since lockdowns forced me to rethink my lifestyle and how important my health is, I've made a decision to start putting myself first and it has really changed my outlook on life. Below are 6 ways I get the most out of life despite living with chronic pain and fatigue: I… Continue reading 6 Ways I Get the Most Out of Life Despite Chronic Illness
May is fibromyalgia awareness month with fibromyalgia awareness day on 12th May. This year I'm working with Fibro Blogger Directory to bring you recommendations from fibromyalgia bloggers around the world on what helps them. There are links to my fellow bloggers if you want more information on any of the recommendations. I have been diagnosed… Continue reading Top Tips For Living With Fibromyalgia
When I was diagnosed with fibromyalgia, the only people I knew who had it were far older than me. When I started to look into it though, quite a lot of young people do suffer with it but it isn't often diagnosed till much later in life. My first symptoms started when I was 13… Continue reading What It’s Like To Be A Young Adult With Fibromyalgia
Putting your own health first over everything else is so important. You may think it feels selfish or rude, but it is essential, especially when living with chronic illness. Chronic illness can make the simplest activities difficult or impossible. You smile and carry on even when you feel like you might break your body/mind. You… Continue reading Putting Your Health First
You feel so deeply about things and you cannot help it. Stimuli can be overwhelming. You absorb other people's emotions. Time pressures make you anxious. You often need to take yourself away from your busy life, to restore your balance. You overthink often. You have a vivid imagination. Change can be hard to process. You… Continue reading The Similarities Between Chronic Illness and Highly Sensitive Personality
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