There's a person in my life who is very important to me But until recently he really didn't understand fibromyalgia Joking about how old I act and how much I moan I needed to find a new way to explain it that would make him understand Amazingly he had a revelation when I wasn't even… Continue reading How Videos Can Help Someone Understand Fibromyalgia
Month: Jan 2019
My 2018 Fibromyalgia Journey
Last year was without a doubt the toughest so far. From finally getting a diagnosis after years of chronic pain to a previous trauma causing PTSD and anxiety, but I survived it. I started my blog in July 2018 when I was inspired to write a poem to try to understand my illness. It was… Continue reading My 2018 Fibromyalgia Journey
Another Week Another Health Issue
It seems that having a chronic illness is like a nightmare game show I would call it Health Issue of the Week And show it to all of my friends and family It feels like every week I have a new symptom or a new injury Just to add to the ever growing list of… Continue reading Another Week Another Health Issue
I’m Not Faking Being Ill, I’m Faking Being Well
You see me smiling And think I am okay You see me out and about I look like I'm having fun ... You see me working hard I look like a normal person You see me socialising And think there can't be anything wrong ... But what you don't see When I get home I'm… Continue reading I’m Not Faking Being Ill, I’m Faking Being Well
Fibromyalgia: What is a Flare Up?
A flare up can be described as a worsening of your symptoms With fibromyalgia it means pain and fatigue to a level much higher than usual A flare up can often leave you bed ridden or at least house bound Having to rely on others to look after you And letting yourself rest until you… Continue reading Fibromyalgia: What is a Flare Up?
Do Fibromyalgia Symptoms Worsen Over Time?
It is often said that fibromyalgia is not progressive But in the year since I have been diagnosed it has gotten much worse I have tried to stay active despite the pain and fatigue But despite all this my health just keeps deteriorating ... I used to be able to do up to 20,000 steps… Continue reading Do Fibromyalgia Symptoms Worsen Over Time?