You long for the old days before you got ill
When you could fit as much as you wanted into your time
Working then making plans afterwards
But it’s just not feasible anymore
…
Chronic illness steals your social life from under your nose
You don’t notice it too much until you look back
You realise you have achieved nothing socially
In weeks, months, or even years
…
You get tired and ill so easily nowadays
You just get through your chores or work
Then you collapse at home exhausted from the day
There’s just no way you can go out after that
…
You make excuses despite wanting to go
Knowing you may not be able to go out
Unless you have a few days of rest before
Which is very unlikely to happen
…
Some friends give up inviting you all together
They think you just don’t enjoy going out
But in reality you would love to but can’t
Making excuses is easier than facing the truth
…
There are some events that are worth it though
When I will put everything on hold to prepare myself
To rest and relax hoping I will be well enough to go
Praying my body will let me have fun
…
You just have to prioritise more now
You need to know your limits
And don’t be afraid to say no
But focus on yourself and try not to let the illness control you
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This is so spot on! It’s a tough balancing act to pace, to deal with the frustration and disappointment, but not to let it stunt your life to such a huge degree that you don’t live it and socialise and get out in the world. Great post!
Caz x
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