Another question asked recently at Fibro Blogger Directory is ‘how do I find a good fibromyalgia doctor near me?
The short answer is unfortunately luck of the draw. Everywhere is different and my experience is only from the UK.
I had to see around 15 doctors in total over 10 years to finally get a diagnosis as many doctors are ignorant or just don’t know of the condition.
The amount of time you get waved off by doctors: “it’s just growing pains”, “just hormones”, “you are just overreacting.”
You feel like giving up, but all it takes is one doctor to look further into it. Someone to say “something isn’t right, we need to do some tests.”
It got to the point where I was close to storming in and saying I think I have fibromyalgia… but just as I was about to do that…
Finally I was referred for more tests and was seen by a rheumatologist who eventually diagnosed me with fibromyalgia.
You have to keep pushing when it comes to doctors, fight for their understanding and belief, express your worst days to them.
We are so used to putting on a brave face and smiling so seeing a doctor and trying to show our weakness as proof is no mean feat!
Once you find a doctor who is willing to help, even if they don’t know much about fibromyalgia, agree to anything they recommend.
You never know what might work for you so please give everything a go. That one thing you dismissed might be the treatment that helps.
You need to be aware that doctors can’t cure you, and fibromyalgia is a really personal condition; everyone experiences it differently.
What works for me might not work for you, so just be open-minded and don’t be afraid to ask your doctor to refer you to someone more experienced.
Go on the courses they tell you to do. The physios and professionals running them are doing so for a reason.
Use their experience to help you. Ask questions and make it useful to you by any means. It is worth a try; what have you got to lose?
I wish I could give you a more positive answer but it really is in our hands to make a difference to the way doctors think of fibromyalgia.
We need to be proactive in ensuring we are not forgotten about. We need to fight for our right to treatment and help when we need it.