It is more painful than you can imagine
Every second of every day
Even when I’m smiling
Even when I’m having fun
My toe suddenly hurts when I walk
My knees feel battered and bruised
My back falls apart doing the simplest of tasks
And my hands ache so badly
It affects every part of my body
And every part of my life
Everything is so much harder
And takes so much longer
My brain shuts off leaving me foggy
I struggle to remember words
Or remember anything at all
I can’t concentrate for too long
I get exhausted so quickly
Not just a tiredness
But an exhaustion where I have to stop
There is nothing I can do to conquer it
No pain no gain doesn’t work
When the pain is 24/7
It never takes a break
It is there no matter what I do
I feel like a burden
Relying on others for help and support
Asking for help is something I’m learning
But I struggle to do it
I can do these things
But they cause more pain
More frustration and fatigue
Sometimes I just need a helping hand
My self-esteem takes a battering
When I’m unable to do something
When I’m forced to rest
To cancel plans and call in sick
Some days are just write offs
They happen all of a sudden
Sometimes I overdo it
It’s so hard to manage when your limits change daily
It’s not just the pain and fatigue
It’s the stomach cramps and IBS
The loneliness and isolation
Being misunderstood
Just because my illness is invisible
Doesn’t mean it’s not there
It is as real as everything else in life
It’s as real as it gets
Yet I often grin and bear it
For life must carry on
I do my best to get where I want
Push myself even when I shouldn’t
Fibromyalgia is a big part of me
But it doesn’t define who I am
I am more than just my illness
It doesn’t define me
Hello Fibro Blog 
Well said! I’m having a horrible flare now! I understand completely!
LikeLiked by 1 person
Thank you! Hope you start to recover soon x
LikeLike
I struggle with depression from being in pain and all that entails. Just wondering if you or anyone has found that Tzanidine increased depressive feelings? Am off it now but started Baclofan now at night only. Thanks.
LikeLiked by 1 person
I’m so sorry you’ve been going through such a tough time. I haven’t had any experience with Tzanidine myself but hope you find something else that works for you. I definitely find prescription meds have more side effects than they are worth with me. I don’t take meds anymore due to this. I find they hinder more than help. I’m now taking CBD oil instead which helps me x
LikeLike
I feel for you so much going through this in your twenties. It was hard enough having my life changed so much when I was in my forties. This post really tells it like it is.
LikeLiked by 1 person
Thanks so much for your kind words x
LikeLike
You explained fibro so well in a few words,straight to the points. After so many years of 24/7 pain I realize this is my life and have mostly just given into it with all the other symptoms that come along as well. The part I find the hardest now is that it seems like nobody has a clue how bad it is unless they have it as well. I have given up even trying to explain it,it’s just easier to say I’m fine
LikeLike