My newest symptom in the ever growing list is internal tremors. I started getting them in my lower left leg, in my calf where I often experience cramp.
An internal tremor is a sensation of vibration within a muscle but without it physically showing any movement on the outside. This can make it quite hard for others to understand as they want to see that something is wrong to know it is there.
I have had trouble with restless legs in the past but having the internal tremors now makes it extremely hard to get comfortable and to settle enough to sleep.
It feels like a hundred bees are buzzing around in my leg, like every muscle is twitching with unspent energy that won’t go away. It’s like my leg has had too much coffee and now it will be awake all night.
The worst thing is it’s no better during the day. Walking is now uncomfortable and I feel off balance. My leg feels weaker than usual and isn’t working quite as it should because of the constant tremor.
I’m hoping it is just a deficiency in something or potentially down to stress. I’ll visit the doctor if it persists, but there is quite a lot of information regarding internal tremors so I will further investigate to see if anything can be done to alleviate it. I enjoy an Epsom salt bath so that may help my leg relax a little and an overdue massage.
Hello Fibro Blog 
Hey Bethan, my names Mandi and I’ve had fibro for about 5 years. During that time I’ve researched heavily into suppliments that may help with especially the pain. And mainly foot pain. I thought I’d give you a list of stuff I take and what I take it for and if you find you have similar then you might benefit from taking some of them.
Oh..and I buy from iherb.com prices and quality really good
Magnesium…I can’t remember dose! But I usually buy Now magnesium inositol…a powder stirred into water b4 bed…relaxes..and most people deficient.
GABBA…great product I use for foot pain but it reduces the excitability of pain nerves. Takes about 4 to 6 weeks but you’ll notice a subtle change. I buy Now brand…750mg and take 1 in morning 1 after dinner b4 bed.
Zinc 50mg…not for everyone but I think have a disorder called pyroluria which causes me to per out all my zinc…huge change once I started taking….stopped being hysterical and tearful…can get tested for this c mostly but only need per sample.
I also take Lyrica 150mg morning and night. . Warning…stopping this drug leaves horrible withdrawal.
And Cymbalta an antidepressant that is indicated for fibro pain….this works for me really well…Warning.. withdrawal symptoms really horrible but I consider it worth while.
I hope I’m not telling you what you already know..but I believe in sharing info as it just might make someone’s life better. As for restless legs…what a nightmare….I’ve only had it like 3 times…I don’t know what my trigger is but I feel it’s related to anxiety in me….anyway …regards…Mandi from Lismore Australia
LikeLike
Did you know that you can now get a generic medication for Lyrica? It is called Pregabalin and it is a lot cheaper so I thought I would mention this to you because as you know when you have Fibromyalgia you really have to be on a budget since most people can’t work.
Take care.
LikeLike
I have tried Lyrica two different times. I had no results.
LikeLike
I have tried generic Lyrica. Pharmacist gave it to me without my knowledge. I noticed symptoms coming back but not so bad. Newer symptoms like intense nausea, more irritability, just not feeling good. I looked at the bottle and that’s how I found out their was a generic for Lyrica. My Dr. said I’m sensitive to it and have to have name brand Lyrica. Ever since a generic came out I’ve had to fight my insurance co for name brand Lyrica. Not fair. So hard lesson learned not all generic meds are the same as name brand!
LikeLike
Please be very careful with lyrica or gabapentin. I have just weaned off a huge devastating side effect is rapid onset of dementia. According to my family I was turning into a zombie and no recollection of conversations past or present. They finally took me to ER with altered mental status aswell as tremors and sometimes almost uncontrollable shaking And it was attributed to Lyrica. Just an fyi. Debbie
LikeLike
Be very careful with lyrica and gabapention both have early and rapid onset dementia. It literally killed both my parents and I was on it and my daughter begged me to come off because I was showing rapid dementia. Now I am clear headed. Of course their is almost 9 months that I will never remember what I said or even did. It’s scary. Also my pain was worse so of course doc kept upping the dose.
LikeLike
So sorry you are having internal tremors, Bethan. This is something I have had off and on for thirteen years, but more so since the fibromyalgia has been worse. For me, it isn’t just legs, but my core area too…around my middle. When the “buzzing” gets strong, it is hard to concentrate. I have noticed when I take magnesium, that is does help a bit…but I have to be careful because magnesium affects my IBS…another fibromyalgia add on ;-( I hope you find some relief soon. Thinking of you.
LikeLiked by 1 person
Hi, Bethan~
I was finally diagnosed with fibromyalgia in 2016, though I’ve had some symptoms for many years. I didn’t seek professional help until I was completely knocked down and laid out by it.
It’s hard to find information about internal tremors. It’s a frightening symptom.
I’ve had them for about a year now involving my hands, arms, legs and core.
Mine occur on waking from deep sleep. I can only answer my phone or type text with great effort and concentration. If I have to use the bathroom urgently, walking and balance are nearly impossible, and I keep a cane by my bed for this.
I can usually sleep them off, if I can go back to sleep, though some episodes last longer than others.
My doctor says it’s hyperexcitability of my nerves. Hmpf. It’s still scary when so much of what is known about our condition is still theory and conjecture.
I supplement my magnesium and calcium with CALM gummies plus a good multivitamin, B complex, and Fibrolief supplements, including one for repair of nerves.
Thank you all for sharing that you experience this too.
LikeLiked by 1 person
Hi Lynelle, yes absolutely. It’s so hard to find information about tremors so it’s just trial and error as to what works or helps a lot of the time
LikeLike
Thank God I’m not the only one that has internal trembling! It is so had to explain to others!
LikeLike
You have no idea Lori,how relieved I am to hear of someone with internal tremors…I have been researching for the last 2 years…up until now I hadn’t heard of anyone with tremors…Mine goes away when I lye down !! I usually get about 10/15 mins when I stand or walk and then it begins…. what a life…Let me know how you are feeling….Kind Regards 🙏
LikeLike
Thank you sometimes I just think I am crazy. But it helps to know this that others feel this. Because it what feel and it muscle rigidy and tremors where no one sees but I feel it.
LikeLiked by 1 person
Hi Bethan,
I’m so glad I’m not going bonkers! You’ve described the feeling I’ve had in my legs (& into my groin area) to a tee. I now have the words to take to my medical team once lockdown is over.
Thank you.
LikeLiked by 1 person
Thank you so much for sharing. I experience the same thing, mine has been mainly within my abdominal region and hands.
LikeLiked by 1 person
Thank you! Nice to know we are not alone x
LikeLiked by 1 person
Of course. Never alone.
LikeLiked by 1 person
Of course. You are never alone.
This brings me, and welcomes you to join myself, and many other warriors on Instagram @Bipolarbree1.
LikeLike
Yes! Yes! Yes! I was having those earlier today. I’ve had them for years. They are so hard to explain to those who have never experienced them.
LikeLike
I have fibromyalgia, but new for the last four weeks is off and on all day and night internal tremors in my chest. Feels like a vibrating feeling like I swallowed a phone on vibrate meets a jittery too much coffee feeling. I actually went to the ER two weeks ago thinking it was my heart, but it wasn’t. Very frustrating. Sometime the vibration is so strong I have a hard time hearing because it feels loud inside. I know that sounds strange. It’s really bothering me and worrying me.
LikeLike
I have it in my chest at times but mostly at the back of my skull and upper neck. It is worse in the evening and night typically. Makes it so I can’t sleep and I find it really disturbing. I am not sure if this is a fibro thing or not. Still looking for answers.
LikeLike
What does yours feel like in your head? I feel my heart pounding in my head and throughout my body. I am wondering if it is more of an internal tremor
LikeLike
I get tremors all over my body when I am tired so badly I have spilt drinks over me.
LikeLike
I’ve been trying to describe this feeling for months! It’s sees to move around my body especially in my arms below the elbow and my neck and the base of my skull. I’ve been practicing sleep hygiene for a while now and I was getting on pretty well until I’ve started with restless legs Honestly fibromyalgia is such a b*#&h!
LikeLike
I’ve had fibromyalgia for over 25 years. Yes I know I’ve had many people tell me that it doesn’t last that long. Trust me it does. When I first got it the doctors had no idea what it was. Mine started out with internal tremors. I was unable to keep my balance because of the tremors and even my husband thought I was full of bull. The tremors finally got better then everything else hit and doctors still didn’t know what fibromyalgia was. It has gotten better in ways or maybe I’m just getting used to it. It is a debilitating illness.
LikeLike
I wanted to share that I’m getting some relief from these ridiculous twitches and nightime leg cramps with 1200mg of guaifenesin morning and night in addition to Magnesium and D-Ribose.
LikeLike
Update I’m finding relief having gone gluten free and taking 1200mg of guaifenesin at bedtime. The tremors and leg cramps have noticeable diminished. Praise be.
LikeLike
I’ve had internal tremors for going on 2 years now. In my abdomen and chest. Feels like shaking a bowl of jello. They make me feel uneasy and unseted. They strike anytime with no rhyme or reason. They can last only up to days. I am learning to live with them as there seems to be nothing that relives them.
LikeLike
Hi I am so glad I’m not the only one who gets this I have it all over my body was told by rheumatologist that it’s fibromyalgia but to find anything written about this as a symptom is hard
LikeLike
I’ve had tremors for few yrs now in my stomach/chest i take propronalol/beta blockers off Drs 10mg takes about twenty mins then tremors disappear
LikeLike
Hello All, I get a single massive TWANG, commonly in the abdomen, inside the skull, and between upper and lower jaw, where this twang caused upper and lower canine teeth to fracture each other. When this symptom is really bothersome, usually in the lower legs,I massage in a good helping of magnesium body butter, seems to relax muscles into letting go of the twanginess.
I’m so sorry that we all have this particular bothersome experience, but also comforted not to be odd or alone ! Best wishes.
LikeLike
I, too, have felt the internal tremors! No real pain sensation with them, no muscle spasms, just a trembling sensation. Mine were not in a specific area or limb, just internally.
LikeLike
’ve not been diagnosed because I hate docs but I feel the vibration in my groin, down my legs and into my feet. Has anyone take theanine for relief?
LikeLike
I have had Fibromyalgia for almost 30 years. That last 6 have been the worst. I just started to have tremors in my core in the last 2 years. I actually thought we were having an earthquake at 1st. Not joking. I just started to take gabapentin and my doctor and are still trying to find a proper dose. My heart goes to all you as it the worst hell ever. Hang in there and please keep a positive attitude. Eat clean, that helps me most of all!
LikeLike
I have had Fibromyalgia for almost 30 years. That last 6 have been the worst. I just started to have tremors in my core in the last 2 years. I actually thought we were having an earthquake at 1st. Not joking. I just started to take gabapentin and my doctor and are still trying to find a proper dose. My heart goes to all you as it the worst hell ever. Hang in there and please keep a positive attitude. Eat clean, that helps me most of all!
LikeLike